Introduction Real-world data studies are a promising option for understanding everyday Parkinson’s disease (PD) management and optimizing strategies and therapeutic options. The Parkinson’s Real-World Impact Assessment (PRISM) project was conceived as a European survey to […]
Background MF/SS-CTCL-QoL is the first specific questionnaire to measure the quality of life (QoL) of patients with mycosis fungoides (MF) and Sézary syndrome (SS). It was developed by the Cutaneous Lymphoma Foundation. Objectives (1) Translate […]
Vitiligo is a chronic autoimmune disease of multifactorial nature that causes skin depigmentation as a consequence of melanocyte loss. Although sometimes it is said to be untreatable, there are therapies that have succeeded in halting […]
Primary cutaneous lymphomas are a heterogeneous group of non-Hodgkin's lymphomas, most of them chronic with multiple relapses, which can have an impact on the patient's quality of life. The main aim of the study was […]
This document proposes a value-based care model to improve adherence and health outcomes in patients with obstructive sleep apnea (OSA) treated with CPAP. The current care model for OSA management adopts a uniform, volume-based approach […]
Introduction This study aimed to compare the effectiveness of a structured self-management program in patients with moderate–severe COPD followed up for 12 months, in improving quality of life, dyspnea, inhaler adherence, anxiety, and depression, compared […]
Introduction Depression affect individuals with multiple sclerosis (MS) more frequently compared with the general population. It can worsen the symptoms of MS, influence disability progression, and significantly reduce the quality of life (QoL). Method We […]
Background Atopic dermatitis (AD) is one of the most prevalent skin diseases, but there are numerous knowledge gaps surrounding the impact this disease has on quality of life (QoL), mental health, and out-of-pocket expenses involved […]
Objective To characterize long-term patient-reported symptoms and quality of life, in adults after COVID-19. Material and methods Cross-sectional study in Cantabria (Northern Spain) including adults with PCR-confirmed SARS-CoV-2 infection (n=694) with a time period between […]
Introduction Lymphangioleiomyomatosis (LAM) is a rare disease that affects women almost exclusively. We aimed to determine the psychological profile in patients with LAM, and their potential association with sociodemographic and clinical features, and to know […]